Barth Syndrome Foundation Home

The Barth Syndrome Foundation, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission statement says, we are dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome. Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner.

OVERVIEW

This web site barthsyndrome.org presently has an average traffic classification of zero (the lower the more users). We have researched eighteen pages inside the web page barthsyndrome.org and found fifty-three websites interfacing with barthsyndrome.org. There is three contacts and locations for barthsyndrome.org to help you reach them. There is three public web sites acquired by this website. This web site barthsyndrome.org has been online for one thousand two hundred and fifty-three weeks, seven days, nineteen hours, and five minutes.
Pages Analyzed
18
Links to this site
53
Contacts
3
Locations
3
Social Links
3
Online Since
Jun 2000

BARTHSYNDROME.ORG RANKINGS

This web site barthsyndrome.org is seeing variant levels of traffic for the duration of the year.
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BARTHSYNDROME.ORG HISTORY

This web site barthsyndrome.org was first submitted to the registrar on June 26, 2000. It is now one thousand two hundred and fifty-three weeks, seven days, nineteen hours, and five minutes young.
REGISTERED
June
2000

PERIOD OF EXISTANCE

24
YEARS
0
MONTHS
7
DAYS

LINKS TO BUSINESS

Barth Syndrome Trust - Saving lives through education, advances in treatment and finding a cure for Barth syndrome

Saving lives through education, advances in treatment and finding a cure for Barth syndrome. New to Barth syndrome? Families, please visit our Newly Diagnosed pages for a summary of what you need to know now. Our website contains a wealth of useful information about Barth syndrome. Help us to make a difference. One day there will be a cure so please join us and help us make that day come sooner.

WHAT DOES BARTHSYNDROME.ORG LOOK LIKE?

Desktop Screenshot of barthsyndrome.org Mobile Screenshot of barthsyndrome.org Tablet Screenshot of barthsyndrome.org

CONTACTS

Barth Syndrome Foundation, Inc.

PERFECT PRIVACY, LLC

12808 Gran Bay Parkway West

Jacksonville, FL, 32258

US

PERFECT PRIVACY, LLC

12808 Gran Bay Parkway West

Jacksonville, FL, 32258

US

PERFECT PRIVACY, LLC

12808 Gran Bay Parkway West

Jacksonville, FL, 32258

US

BARTHSYNDROME.ORG HOST

Our web crawlers found that a lone root page on barthsyndrome.org took two thousand one hundred and eighty-eight milliseconds to come up. Our web crawlers found a SSL certificate, so therefore our parsers consider barthsyndrome.org secure.
Load time
2.188 seconds
SSL
SECURE
Internet Address
52.5.5.85

NAME SERVERS

ns1.iamonline.com
ns2.iamonline.com

BOOKMARK ICON

SERVER OPERATING SYSTEM AND ENCODING

I found that barthsyndrome.org is employing the Apache operating system.

TITLE

Barth Syndrome Foundation Home

DESCRIPTION

The Barth Syndrome Foundation, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission statement says, we are dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome. Working together we are making a difference in the lives of children and their families. One day there will be a cure; we hope you will help us make that day come sooner.

CONTENT

This web site has the following in the web page, "Scientific and Medical Advisory Board." Our analyzers noticed that the web site also stated " Barth Syndrome Registry and Repository." The Website also said " Human Tafazzin TAZ Gene Variants Database. Scientific and Medical Journal Articles. NIH and Other Agencies Research Initiatives. What is Barth Syndrome? International Classification of Disease. Other Important Findings by System. Barth Syndrome Diagnostic Laboratory Testing." The website's header had Barth syndrome as the most important optimized keyword. It is followed by cardiomyopathy, dilated, and hypertrophic which isn't as highly ranked as Barth syndrome. The next words barthsyndrome.org uses is BTHS. CMD3A was included and will not be seen by search engines.

SIMILAR WEB PAGES

Barth Syndrome Trust - Saving lives through education, advances in treatment and finding a cure for Barth syndrome

Saving lives through education, advances in treatment and finding a cure for Barth syndrome. New to Barth syndrome? Families, please visit our Newly Diagnosed pages for a summary of what you need to know now. Our website contains a wealth of useful information about Barth syndrome. Help us to make a difference. One day there will be a cure so please join us and help us make that day come sooner.

BARTH SYSTEME

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